Nothing new to report on the Pilomatrical Carcinoma front. I am back at Zumba, I went to a work day in the mountains, and I am continuing to heal.
I still have the bandage, the vaseline, the tape and the headbands...
But I look good, I feel good...
I'll see the doc in about 2 weeks and short of any new developments prior to that, I'll report back later.
Pilomatrical Carcinoma; A Love Story
A check-up from the neck up.
Thursday, October 6, 2011
Saturday, September 17, 2011
Infinity and Beyond
So the headbands are continuing to sustain my look and hold the bandages in place.
My last visit to the doctor was a success, and I don't have to go back til October 21st.
It's all good. Really.
I am finally going back to Zumba Monday.
I cannot wait. I cannot express that enough.
Water aerobics to follow.
My last visit to the doctor was a success, and I don't have to go back til October 21st.
It's all good. Really.
I am finally going back to Zumba Monday.
I cannot wait. I cannot express that enough.
Water aerobics to follow.
Wednesday, August 31, 2011
Week 5
Not much to report. I finally gave up on scarves. I got sick of looking sick and pitiful, and having to describe my condition.
I have graduated to covering the tape and bandage with hair - as much as I can fluff up, and a headband to keep it tight and on there.
I head back to Dr. S a week from tomorrow, where I assume he'll look at it, take a picture, and have me come back in a month.
We're basically in heal mode, and there's nothing more I can do.
I'll continue to keep you posted.
If you've read this far, I'd recommend buying stock in Johnson and Johnson or Curad - because I am buying the hell out of non-stick gauze, tape and so on.
Also, get stock in Charming Charlie's because I love their headbands.
To wit:
I have graduated to covering the tape and bandage with hair - as much as I can fluff up, and a headband to keep it tight and on there.
I head back to Dr. S a week from tomorrow, where I assume he'll look at it, take a picture, and have me come back in a month.
We're basically in heal mode, and there's nothing more I can do.
I'll continue to keep you posted.
If you've read this far, I'd recommend buying stock in Johnson and Johnson or Curad - because I am buying the hell out of non-stick gauze, tape and so on.
Also, get stock in Charming Charlie's because I love their headbands.
To wit:
This is the face (and head) of Pilomatrical Carcinoma |
I'm going back this weekend for one with feathers, and a few in bright jazzy colors. Life, after all, is short.
Thursday, August 25, 2011
Four weeks and one day...
If anything, I'm sick of spending money on Telfa pads, tape and headscarves.
Yesterday, I changed my bandage at the end of my work day, before going out for a team-building thing with my department, and it looked a little scary - like, infection scary.
I decided there wasn't anything I could do at that exact moment, so I just girded my loins, and in this case, cranium and got going.
By the time I got home I seemed to be in a better place. I don't know how to explain it, except to say that seeing green goo on your old bandage is scary.
I'm pretty sure I'm ok, though.
There's not a lot of pain, unless we're talking about having to pull tape out of my hair to change the aforementioned dressing. And that hurts pretty much every time.
Even though I was cleared for Zumba, I haven't gone back. I'm kind of afraid to - plus, this week has been booked pretty solid.
Oh, and it's not all beer and roses from the insurance company. I owe the radiologist $517.
Awesome.
Wednesday, August 17, 2011
3 weeks post-procedure. Suture removal.
I saw Dr. S's colleague, whose last name also starts with S -- so we'll call him Dr. S2. S2, Along with Dr. I looked at the gaping hole in my head and pronounced it "clean as a bell". We then changed bell to whistle, and they removed the stitches.
He said, whatever I've been doing, to keep it up because it looks perfect. He said within 3 months, I'll be amazed at how good it looks.
I'll be shedding the scarves by Christmas!!!
It might be worth buying a few new scarves.
Anyway, back to see Dr. S1 n 3 more weeks, and we're moving along.
I cajoled a little and was cleared for Zumba. I promised to be gentle and stop if things went funky.
He said, whatever I've been doing, to keep it up because it looks perfect. He said within 3 months, I'll be amazed at how good it looks.
I'll be shedding the scarves by Christmas!!!
It might be worth buying a few new scarves.
Anyway, back to see Dr. S1 n 3 more weeks, and we're moving along.
I cajoled a little and was cleared for Zumba. I promised to be gentle and stop if things went funky.
Wednesday, August 10, 2011
Pilomatrical Carcinoma - really two weeks now.
Today is the 2 week mark, and I celebrated by banging my wound into the frame of a kitchen cabinet while getting out a trash can liner.
Nice. I went and cleaned the wound and re-bandaged, but you know it hurt like hell. Score one for me.
I've been feeling kind of sorry for myself this week. It's the scarf, it's the inability to show my scalp.
It actually itched this morning and I was grateful for feeling - anything other than pain.
I managed to lose the surgery weight, as proved by my weigh in this afternoon.
And that, I believe is all I have to say.
Except this. I have a doctor visit a week from today. Why did I have a message from their office to remind me? I don't need the reminder today- that's asking a lot of my memory - short term and otherwise.
And I'll be honest, my mind hasn't been right since the surgery, but I think I'm just addled by my own devices.
Nice. I went and cleaned the wound and re-bandaged, but you know it hurt like hell. Score one for me.
I've been feeling kind of sorry for myself this week. It's the scarf, it's the inability to show my scalp.
It actually itched this morning and I was grateful for feeling - anything other than pain.
I managed to lose the surgery weight, as proved by my weigh in this afternoon.
And that, I believe is all I have to say.
Except this. I have a doctor visit a week from today. Why did I have a message from their office to remind me? I don't need the reminder today- that's asking a lot of my memory - short term and otherwise.
And I'll be honest, my mind hasn't been right since the surgery, but I think I'm just addled by my own devices.
Tuesday, August 9, 2011
Pilomatrical Carcinoma - Two weeks Post-op (well, almost)
I've gone ahead and explained to people at work the reason behind my scarves, although I've been vague with most - citing either "a growth" or "skin cancer". Depending on how well I know them, or the context, I'll tell more. Most people think the scarves are cute and didn't realize there was a gaping cesspool being concealed beneath them.
Score one for scarves.
I will say that I cannot seem to sleep enough - I spent most of the weekend laid out, asleep.
I have resumed all my normal activities except for exercise. Which blows, because honestly, I do love my Water Aerobics and Zumba classes. Time will tell.
Meanwhile, this weekend, I'm going out of town for a little boondoggle with my husband's family - they know nothing about my hair cancer, and though I'll have to probably say a little something, I don't care to get into details too much.
My mother will be coming up as well - naturally, she really wants to see it - she's been a nurse for nearly 40 years and so, of course - that's her bag.
I honestly think that's the only reason she's coming. Isn't that messed up? Oh well.
The pain comes and goes. I must have slept on my wound last night, because it's been a little sore today.
I also feel like the manky smell has either mitigated, or I've gotten used to it, or both.
And finally, next week I travel for work - first time since the procedure. I'm worried, but not overly so. It's fine. It will be fine.
So, in summary - the scarves are working, I'm disclosing as I see fit, the pain is under control, and the manky smell is less manky, less smelly.
And a week from tomorrow, I go back to Dr. S.
OH! And, I'm dropping the weight I picked up during my recuperative period. Tomorrow should be a great weigh-in.
Wish me lots of luck!
Score one for scarves.
I will say that I cannot seem to sleep enough - I spent most of the weekend laid out, asleep.
I have resumed all my normal activities except for exercise. Which blows, because honestly, I do love my Water Aerobics and Zumba classes. Time will tell.
Meanwhile, this weekend, I'm going out of town for a little boondoggle with my husband's family - they know nothing about my hair cancer, and though I'll have to probably say a little something, I don't care to get into details too much.
My mother will be coming up as well - naturally, she really wants to see it - she's been a nurse for nearly 40 years and so, of course - that's her bag.
I honestly think that's the only reason she's coming. Isn't that messed up? Oh well.
The pain comes and goes. I must have slept on my wound last night, because it's been a little sore today.
I also feel like the manky smell has either mitigated, or I've gotten used to it, or both.
And finally, next week I travel for work - first time since the procedure. I'm worried, but not overly so. It's fine. It will be fine.
So, in summary - the scarves are working, I'm disclosing as I see fit, the pain is under control, and the manky smell is less manky, less smelly.
And a week from tomorrow, I go back to Dr. S.
OH! And, I'm dropping the weight I picked up during my recuperative period. Tomorrow should be a great weigh-in.
Wish me lots of luck!
Subscribe to:
Posts (Atom)